Easter Saturday is the quiet day. It’s the day after the report, after the diagnosis. After the prayer. After the hope that something would change. But nothing has changed. It is the space where we feel suspended, stuck. Not where we were, but not yet where we believe we will be. The miracle has not… Continue reading Stuck

Good Friday can feel like a day where we can’t find the right words. Words meaningful enough to respond to Jesus dying on the cross for us - the depth of love shown. But today, in the car with Oscar, I was reminded that maybe the simplest words are the most powerful. Out of nowhere… Continue reading Thank you Jesus

Where am I in the crowd of Palm Sunday? Am I immersed in the crowd, palm branches in my hands, hope rising within, excitement building as Jesus enters the city? Would I be there - rejoicing, celebrating? Shouting Hosanna! Welcoming the King with faith unwavering. But then I pause. Because just a few days later,… Continue reading Where am I?

Someone asked me recently what my dreams were for Oscar. I surprised myself when I said I didn’t really have any. In that moment I couldn’t think of one, other than just taking life as it comes. The truth is, so many dreams and hopes for him have not come to pass. And I sit… Continue reading Dry Bones

Oscar’s morning routine on waking is somewhat unpredictable, which means for me can be anything from quiet calm to heart racing panic. But since the start of December, most mornings, before the house is fully awake, Oscar has headed downstairs and straight for the Christmas tree to check if there are any presents under the… Continue reading Advent – The countdown

“Take notice of what the light does – to everything.” Tess Guinery Advent is about waiting, to watch and hope for morning. George de La Tour’s The Adoration of the Shepherds teaches us how to look in this season. The room is almost entirely dark. A candle burns, but the flame itself is hidden by… Continue reading Advent – Notice the light

Watching Oscar get his face painted is pure joy. He sits patiently, focused, as each stroke transforms him into Batman. And when he finally sees himself in the mirror - his surprise and delight at the end result is very evident. Advent is a bit like that. We wait, sometimes in darkness, for the promise… Continue reading Advent – Delight in waiting

As Christmas approached, the office was still busy - deadlines, meetings, and the usual end-of-year rush. But alongside the work, the decorations started appearing. Tinsel on desks, Christmas trees in common spaces, often treats in the kitchen. The CX team went harder than the rest of us, fully committing to their decorations. Windows, desks all… Continue reading Joy in the ordinary

It’s hard not to feel sometimes that you’re on the margins. Having a child with sensory needs can mean that the “party,” so to speak, requires careful navigation if you’re to attempt attending. Santa parades and large gatherings are often avoided. A visit to Santa is orchestrated for the very first opening, before the crowds… Continue reading Advent – Missing Out

Advent begins in the dark. Not the cosy darkness softened by fairy lights and carols, but the kind the people of Israel knew well—long waiting, heavy oppression, unanswered prayers, and the aching silence of heaven. Scripture tells us, “The people walking in darkness have seen a great light” (Isaiah 9:2). That promise was spoken into… Continue reading Advent in a dark world