There are very few times that I leave Oscar's therapy sessions without feeling positive about the future. The last speech therapy session though had me leave shoulders slumped. The session itself was great, Oscar obliging in the tasks set for him. It was the comment as we look ahead to Oscar starting school that there… Continue reading Keep Calm
The Doctor is back, telling me again that Oscar has Down syndrome - why does she have to keep saying it? She holds Oscar and he roars back at her. That's my boy. My room is like a train station. So many people, so many tests. I have panic attacks - can't breathe, feel like… Continue reading Man of Sorrows
The shattering of a heart when being broken is the loudest quiet ever.Carroll Bryant I broke a glass the other night. With a crash it completely shattered on my bench top, into what I felt was a million pieces. Beyond repair. The mess cleaned up and the broken pieces thrown away. Sometimes, doesn't our heart… Continue reading The Shattered Heart
October is World Down Syndrome awareness month. So I wondered if I should write about it. Perhaps share what is medically involved with that extra little chromosome. But that though would just be a list of facts. And that's not our story. That's not a definition of Oscar's life. When I was told at Oscar's birth that he… Continue reading I didn’t know….
Today. 21st March 2017. World Down Syndrome Day. A year ago I think I barely knew that this day existed. I can vaguely remember seeing sweet smiling faces across my television screen. But they weren't one of my boys. It wasn't part of my world. Then a mere few weeks later, having just given birth, the… Continue reading Celebrating Oscar
Recently we told our boys that our little one has down syndrome. We explained what it meant and told them that while he would be able to do everything that they can do, it might take him a little longer and be harder to learn how to. We waited for the reactions. We wondered what impact that this would have.… Continue reading Those words mean nothing…