Life Lessons · Uncategorized

I didn’t know….

October is World Down Syndrome awareness month. So I wondered if I should write about it. Perhaps share what is medically involved with that extra little chromosome. But that though would just be a list of facts.

And that’s not our story. That’s not a definition of Oscar’s life.

When I was told at Oscar’s birth that he had down syndrome there was a lot that I didn’t know. All I knew were some very limited facts and perceptions, some of them, to be honest, not very encouraging. I jumped straight to all the moments ahead in life where I thought life would be hard for him. I didn’t know what our lives would look like and I was scared.

So yeah, I didn’t know much. I didn’t know about the low muscle tone or that they start walking later than most babies. I didn’t know about the hospital appointments that would be required and therapy he would need.

But I also didn’t know Oscar.

I didn’t know that he would snuggle into you like a koala.

I didn’t know that his smile would light up his whole face and for that matter whatever room he was in.

I didn’t know he would have a great sense of humour.

I didn’t know that he would love books, baths and balls or indeed that bath would be one of his first words.

I didn’t know that he would love the outside and especially having a swing.

I didn’t know that he would love cheese scones.

I didn’t know that he would have sheer grit and determination and would time and time demonstrate that he’s got this.

And I didn’t know that life would continue as normal, as a family enjoying life and having fun, going on adventures and that having Oscar would make the adventures and our lives even more richer.

I didn’t know joy like this.

I didn’t know love like this.


8 thoughts on “I didn’t know….

  1. Wow! Praise God! This is the love our son Peter spoke of ‘seeing’ when he met that man in London many years ago. Bless you all. Judy

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