October is World Down Syndrome awareness month. So I wondered if I should write about it. Perhaps share what is medically involved with that extra little chromosome. But that though would just be a list of facts.
And that’s not our story. That’s not a definition of Oscar’s life.
When I was told at Oscar’s birth that he had down syndrome there was a lot that I didn’t know. All I knew were some very limited facts and perceptions, some of them, to be honest, not very encouraging. I jumped straight to all the moments ahead in life where I thought life would be hard for him. I didn’t know what our lives would look like and I was scared.
So yeah, I didn’t know much. I didn’t know about the low muscle tone or that they start walking later than most babies. I didn’t know about the hospital appointments that would be required and therapy he would need.
But I also didn’t know Oscar.
I didn’t know that he would snuggle into you like a koala.
I didn’t know that his smile would light up his whole face and for that matter whatever room he was in.
I didn’t know he would have a great sense of humour.
I didn’t know that he would love books, baths and balls or indeed that bath would be one of his first words.
I didn’t know that he would love the outside and especially having a swing.
I didn’t know that he would love cheese scones.
I didn’t know that he would have sheer grit and determination and would time and time demonstrate that he’s got this.
And I didn’t know that life would continue as normal, as a family enjoying life and having fun, going on adventures and that having Oscar would make the adventures and our lives even more richer.
I didn’t know joy like this.
I didn’t know love like this.